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Tuesday, June 15, 2010

Even I Could Have Done a Better MRI Report

I never seem to be disappointed by the drama and senseless crap that arises in the IF world. This week ushered in a new meaning of the word clusterfuck.

The MRI facility (Columbia Circle Imagining in NYC) that did my pelvic scan was instructed to send the report to not only the ordering physician, but to two of my doctors in California: my ob/gyn and the surgeon that is doing my lap. Did they send them? No. Did the ordering doctor get his copy? No. Despite my being told that my doctor would have his copy by Wednesday or Thursday of next week, he only received it yesterday (Monday).

Did the screw ups stop there?

Heh. Not a chance

When I discovered that none of my physicians had the report, I asked that one be sent to me immediately so that I could ensure that my physicians received it in a timely manner.

This is where I discovered how screwed up things really were with this MRI facility.

Okay, imagine these measurements that were in the report.

My uterus measured: 7.8cm in length, 4.5cm in width, and 5.2 cm in transverse dimension.

Really? My uterus is 5.2cm thick? Holy crap. You would think the countless ultrasounds I've had this year would have picked this up. I should be "showing" with a measurement like this!

Now this is damned near hilarious:
"There is a 1.5 x 9.4 x 1.2cm intramural leiomyoma (fibroid) in the anterior uterine fundus."

The fundus is the top curved part of the uterus. Put these two dimensions together and I have a uterus with a 9.4cm cigar on top of it? Who put that there?

WTF? In all seriousness, this is just crap. Shoddy work by the MD that wrote up this report. If I had a NINE POINT FOUR CENTIMETER fibroid transversing the top of my uterus, my multiple REs would have seen it by now. I'm sure he meant to write 0.94cm, not 9.4cm, but why isn't someone doing a sanity check on these things? Am I the only person that proofreads things?

It doesn't end here though.

On page two he writes:

"There is a convoluted tubular structure at the right posterior lateral cul-de-sac that demonstrate increased signal on T1 - weighted imaging and shading on T2-weighted imaging. It measures 3.1 x 1.7cm. This may represent endometriosis possibly within the fallopian tube. A normal appearing right ovary is not seen."

Two problems here.

1. I do not have fallopian tubes. So what he is viewing, I have no idea.
2. I DO have a right ovary. It has a whopper of an endometrioma on it and causes me quite a bit of discomfort.

So, he thinks I have tubes, and I don't....and he can't find my blessed right ovary.

WTF?

More drama ensued from Dr. K at Yale. He got a bee in his bonnet about my age and is not wanting to do my EFT test because he thinks that, at my age, I should be doing donor egg. He seemed fine until he spoke with Dr. Indian at CU. So, something's amiss there.

I phoned Dr. Indian to see if he finally got the MRI report and he hasn't called back. Hmm.

Even more drama. Last week when I actually DID speak to Dr. Indian, he expressed that the clinic where he is at won't freeze my embryos, because of MY AGE. They also won't let me cycle when I turn 46 in November. This is messed up. I have just enough time to do 3 cycles. But I don't want to transfer anything into my uterus unless I am assured that my endometrium is fine. And Dr. K doesn't want to do the EFT test. I haven't yet found a surrogate, but I have a few good leads. And, then if I do the surgery, I'll need to sit out a month or so to heal.

I feel like the clock is ticking louder than it ever has before.

Despite my love for my clinic (CU in NYC), I feel that I have to research clinics and jump ship fast. I just can't cycle right now and put anything inside of me. It's a waste of embryos, time, and money. I need time. I need for someone to stop the clock ticking right now.

I am looking at Cooper in NJ, NYU, and Cornell. I'm also pondering the clinic on the UES called NH. They're out of network but they do 3 mini ivfs for about $8K plus freezing. They don't have FSH or age cutoffs. So these are the best in my local area. Tomorrow afternoon, after the madness of the day's meetings, I plan on finding a conference room at work, locking myself inside, and making the calls as fast as I can.

I have 5 months to have surgery, cycle, freeze everything, unless I can find a clinic that will let me cycle past the age of 45. NH will, but they're a little strange and I wasn't impressed with their facility. I did like the RE but support staff, such as lab, are one of the most crucial elements to a successful IVF.

Any suggestions ladies?

(And please please please, for the love of god, please don't say donor egg or adoption ... it's just not something I can do).

Labels: , ,

Comments on "Even I Could Have Done a Better MRI Report"

 

Blogger Julize said ... (12:19 AM) : 

You know, I'd be inclined to just tell Dr. K that you're planning to do donor embryos so he'll do the test. You can always say later that you changed you mind, right? I hate it when doctors won't let you make your own decisions. If you want to keep trying with your own eggs that should be your business and your decision, right? They get paid either way.

I'd stay far, far away from NH. Have heard some pretty bad things about them. The other 3 all sound fine (although I've heard some people have problems with insurance coverage at Cornell).
I'm not understanding the MRI results. Wtf?

 

Anonymous Anonymous said ... (6:33 AM) : 

Can't you reschedule the surgery earlier? When inside fluid gets cleaner after endometriosis surgery, it helps send necessary signals to develop better eggs.

 

Blogger Adele said ... (8:51 AM) : 

I'm so sorry. That report is criminal, it doesn't even sound like it's describing you. I'd call them and complain. It sounds like really - really - shoddy, unprofessional work.

And I'm so sorry about that ticking clock. It should be your decision. Period. Nobody else has that right.

 

Blogger linda said ... (9:55 AM) : 

@Julize: I can't just tell him that I want to do donor because the endometrium test for donor transfers is different. I did think of being sneaky and doing that but then realized it wouldn't work. (Great minds think alike!!)
Please fill me in on NH. I was intrigued by their getting women knocked up in their late 40's with their own eggs.

@Anonymous:
No, this darned doctor is hard to get in touch with. This was the first available date. But you know, I should call and see if there are any cancellations. Agree totally that getting rid of endo is key to normalizing things!

@Adele:
It is just horrible that they let this report out. They still haven't called me to explain if they'll be generating a new report. Imagine the lawsuit I could have if I had surgery based on the 9.4cm measurement and then nothing was found.

I wish it was my decision. I'm not a statistic. I know that my odds are low, but I also know that biologically speaking, I am an incredibly young 45. I have taken megadoses of supplements since I was 19 or 20, have low blood pressure, and can easily pass for someone in my late 30's. Women in my family live to their 90s, routinely. I think I've got a little bit of an edge here over my other 45 year old sisters. :-)

 

Anonymous Jamie said ... (3:35 PM) : 

I'm so, so sorry about this. Can you imagine what it's like for people without your level of intelligence and organization? They just eventually have to give up.

I've cycled with Cooper and it went fine. The pros: they are cheap and not biased against older women. Their lab is decent. The cons: they are disorganized and very, very busy. You will wait a while any time you go there. You have to learn their system.

I cycled there and had a chemical (top beta 57). I've since decided to go to a place closer to home, but I certainly think they are a good option. I'd be very interested to hear what Dr. Check has to say about your case if you can take the time for a consultation with him.

Good luck!

 

Anonymous musicmakermomma said ... (2:46 AM) : 

Do they just give you these insane numbers so you have things to blog about? What kind of crap report was that?!

I am so sorry you are getting the age runaround - I don't understand why, after making sure you understand the stats, they don't let you decide for yourself whether to cycle with your own eggs or not! I decided the best way to another baby was DE, but as it turns out the perfect embies I have been sticking in are all rejected by, who knows what - really I think the RE is graspiing at straws. My bicornuate ute was a good scapegoat, but it did manage to belt out one perfectly healthy baby with no ART! Bah.

Good luck hon, thinking of you.

 

Blogger Mo said ... (12:19 AM) : 

one more thing to throw into the mix of your planning. I had the EFT test with Dr. K at Yale after my laparoscopy last spring to remove stage III endo. He said I needed to wait a couple of cycles after the surgery or the endometriosis inflammation could throw off the results. Out at Denver, they aren't such big believers in the EFT test b/c they said Dr. K doesn't give you any answers of what to make of or do about abnormal results. they use the beta integrin test, but suggested I just two two months of depot lupron before a transfer regardless of the beta integrin levels b/c of the endo history (even with the lap, they said I could still have microscopic endo that could impact implantation). so just planning on doing that before you transfer anything might be an option to consider.

hope this helps. sorry this is so hard.

mo

 

Blogger linda said ... (11:11 AM) : 

Mo,
Thanks for much for the comment. This is really useful. I trust what CCRM thinks of the EFT test. I've often suspected that since I'm stage 3 or 4 endo (this was before my lap in 2006 to remove it all) that lupron depot was probably the way to go. But I so seriously think that a surrogate is my only chance...and I am still looking, but all of the clinics in NYC refuse to transfer into a paid surrogate. I'll blog on this today as I hit a bit of a surrogate wall that I need to vent about.

Another thing that throws it all up in the air is that the endo surgeon at Stanford (Dr. CN) is completely against lupron depot. He thinks lupron makes endo worse. I'm so lost about what is the best thing to do when one has endo. Too many docs out there with too many different opinions.

 

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