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Monday, October 04, 2010

And then I went and took a break

I sorta dropped off the radar there. I was hoping to get started with another cycle after the dismal cycle where I had only two teeny tiny cysts...but that all went to hell, too. (MusicMakerMomma - I saw your post about my disppearance. I am sorry about not replying right away. I was out of the country for a bit, then on the west coast, and here I sit in the Philadelphia airport blogging for the first time in a month and a half. :-)

Two periods ago, I went to see Dr. C - I was about 7 days late for my period, something that NEVER happens to me. I was on edge as to what was going on with my body. Things didn't feel quite right, and with good reason. Amazingly that dormant right ovary had waken up, but rather than having antral follicles, I was blessed with three ovarian cysts: 2 on the right, 1 on the left. And they were grouped from about 15 to 22mm. The first thing I wondered is whether my late period had swung things out of sync. Maybe they were functional cysts? If so, I could trigger in about 2 days and do a cycle without ever so much as a drop of Gonal-F. But alas, the E2 came in normal, implying that they were cysts, not follicles. Sigh. I was bummed. But what it really meant was that the cycle would be canceled.

On the bright side, the right ovary has indeed woken up.

Fast forward another cycle. Mid September I hop a plane for Germany and France for work. The last day of the trip, AF arrives. Perfect. But again, I was put off from cycling by my GI who wants to do a full colonoscopy before I cycle. I've had chronic "looseness" since two weeks after my surgery (started about July 14 or 15). Nothing has helped. I've done full courses of cipro and flagyl to hit gram +/- bacteria. I've been tested for every bacteria, parasite, protozoa - tested 3 consecutive days for everything just to be sure nothing was missed ... all the tests were negative. They tested my thyroid (normal), they looked for antibodies to wheat (implies Celiac Disease). Normal, too. He's concerned that I might have Chron's Disease, but I doubt it. I've been scoped and biopsied before and it wasn't there. But he said that it can pop up randomly - he said he's seen a person test normal for it, and then test positive six months later. (Makes me wonder how accurate the tests are?) He feels that doing a cycle before we know for sure about the Chron's could spell doom.

I canceled again. Actually, I never made it to see the RE this time. I just didn't appear. I should call him and fill him in on the details just so he knows that I'm still out there.

The GI is probably right and his wife, an OB/GYN that did a fellowship with my surgeon, Dr. Persian, is hip to the theories that I'm operating under. I'm just in one damned hurry to cycle and this perpetual putting it off when I'm about to turn 46 is making me crazy. But, on the bright side (there always has to be one), my ovaries might be fully healed by the next cycle, the adderal may have kicked in to cure my endo issues, and it could be a stellar cycle.

So, I've been eating probiotics up the wazoo. Probably 4 to 8 times what the bottles/boxes say to try. And finally, things are starting to feel a bit better. Oddly. So my scoping is set for Friday, but now I'm a wee bit worried that I might set myself back if I am indeed progressing. What to do? I would hate to cancel the appointment, hoping I am getting better, only to relapse and then find myself starting at yet another canceled cycle.

Sigh.

That's where it's all been at. One thing after another. No progress whatsoever.

My apologies for dropping off the face of the planet like that. When it gets to stressful for me to deal with, I tend to run off and hide.

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Comments on "And then I went and took a break"

 

Anonymous musicmakermomma said ... (2:02 AM) : 

So glad to hear from you - of course I understand if you need some time off the blog. But since you left us kind of cliffhanging I was a little worried! I feel like we are in the same boat in many ways. Hoping your ovarys are healing up and ready for a real go here in the next month!

 

Blogger Adele said ... (7:40 AM) : 

It's good to see you back, Linda. I know what you mean about dropping out of sight when the going is rough. And waiting - and constant postponement - is very rough. I'm sorry to hear about the probing and while I am glad that nothing has shown up on the Celiac/bacterial front I hope that it is NOT Crohn's, that you get the green light AND that beautiful bright-side cycle.

 

Blogger Mad Hatter said ... (1:01 AM) : 

Will be thinking of you tomorrow, Linda - I hope everything goes well and that right ovary continues to be nice and perky!
Love,
Maddy

 

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