I never seem to be disappointed by the drama and senseless crap that arises in the IF world. This week ushered in a new meaning of the word clusterfuck.
The MRI facility (Columbia Circle Imagining in NYC) that did my pelvic scan was instructed to send the report to not only the ordering physician, but to two of my doctors in California: my ob/gyn and the surgeon that is doing my lap. Did they send them? No. Did the ordering doctor get his copy? No. Despite my being told that my doctor would have his copy by Wednesday or Thursday of next week, he only received it yesterday (Monday).
Did the screw ups stop there?
Heh. Not a chance
When I discovered that none of my physicians had the report, I asked that one be sent to me immediately so that I could ensure that my physicians received it in a timely manner.
This is where I discovered how screwed up things really were with this MRI facility.
Okay, imagine these measurements that were in the report.
My uterus measured: 7.8cm in length, 4.5cm in width, and 5.2 cm in transverse dimension.
Really? My uterus is 5.2cm thick? Holy crap. You would think the countless ultrasounds I've had this year would have picked this up. I should be "showing" with a measurement like this!
Now this is damned near hilarious:
"There is a 1.5 x 9.4 x 1.2cm intramural leiomyoma (fibroid) in the anterior uterine fundus."
The fundus is the top curved part of the uterus. Put these two dimensions together and I have a uterus with a 9.4cm cigar on top of it? Who put that there?
WTF? In all seriousness, this is just crap. Shoddy work by the MD that wrote up this report. If I had a NINE POINT FOUR CENTIMETER fibroid transversing the top of my uterus, my multiple REs would have seen it by now. I'm sure he meant to write 0.94cm, not 9.4cm, but why isn't someone doing a sanity check on these things? Am I the only person that proofreads things?
It doesn't end here though.
On page two he writes:
"There is a convoluted tubular structure at the right posterior lateral cul-de-sac that demonstrate increased signal on T1 - weighted imaging and shading on T2-weighted imaging. It measures 3.1 x 1.7cm. This may represent endometriosis possibly within the fallopian tube. A normal appearing right ovary is not seen."
Two problems here.
1. I do not have fallopian tubes. So what he is viewing, I have no idea.
2. I DO have a right ovary. It has a whopper of an endometrioma on it and causes me quite a bit of discomfort.
So, he thinks I have tubes, and I don't....and he can't find my blessed right ovary.
WTF?
More drama ensued from Dr. K at Yale. He got a bee in his bonnet about my age and is not wanting to do my EFT test because he thinks that, at my age, I should be doing donor egg. He seemed fine until he spoke with Dr. Indian at CU. So, something's amiss there.
I phoned Dr. Indian to see if he finally got the MRI report and he hasn't called back. Hmm.
Even more drama. Last week when I actually DID speak to Dr. Indian, he expressed that the clinic where he is at won't freeze my embryos, because of MY AGE. They also won't let me cycle when I turn 46 in November. This is messed up. I have just enough time to do 3 cycles. But I don't want to transfer anything into my uterus unless I am assured that my endometrium is fine. And Dr. K doesn't want to do the EFT test. I haven't yet found a surrogate, but I have a few good leads. And, then if I do the surgery, I'll need to sit out a month or so to heal.
I feel like the clock is ticking louder than it ever has before.
Despite my love for my clinic (CU in NYC), I feel that I have to research clinics and jump ship fast. I just can't cycle right now and put anything inside of me. It's a waste of embryos, time, and money. I need time. I need for someone to stop the clock ticking right now.
I am looking at Cooper in NJ, NYU, and Cornell. I'm also pondering the clinic on the UES called NH. They're out of network but they do 3 mini ivfs for about $8K plus freezing. They don't have FSH or age cutoffs. So these are the best in my local area. Tomorrow afternoon, after the madness of the day's meetings, I plan on finding a conference room at work, locking myself inside, and making the calls as fast as I can.
I have 5 months to have surgery, cycle, freeze everything, unless I can find a clinic that will let me cycle past the age of 45. NH will, but they're a little strange and I wasn't impressed with their facility. I did like the RE but support staff, such as lab, are one of the most crucial elements to a successful IVF.
Any suggestions ladies?
(And please please please, for the love of god, please don't say donor egg or adoption ... it's just not something I can do).
Labels: Jumping the Clinic, Pelvic MRI, The Hell that IVF Is